Nooon

A platform inspired by a personal journey, exploration, and reflection on life as a person born and living with a disability. This website showcases my experiences, collaborations, and projects aimed at fostering dialogue, inspiring understanding, and promoting inclusion and innovation while celebrating resilience. Through this project, I share insights, stories, and research that encourage meaningful conversations and drive positive change.

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Nooon: Search Engine for Disability related knowledge

Mockup of Nooon search engine

Posted on 22/05/2025 by admin

Nooon is a research-driven search engine dedicated to people with disabilities who require search engines that surface structured, accessible and representative information while ensuring privacy in both access and contribution.

Empowering Data Sovereignty through OpenWebSearch.EU, Reclaiming the Web for Disability Knowledge: A Use Case for OpenWebSearch

I introduce a vertical search engine prototype—being developed as part of WP4 and WP6 in OpenWebSearch.eu project—that demonstrates a concrete application of the OpenWebSearch infrastructure. This prototype, named “Nooon”, is a research-driven search engine dedicated to disability-related data. The conceptual foundation of Nooon was recently accepted to the Cambridge Forum on AI: Culture and Society – Themed Issue: Empirical AI Ethics The accepted abstract can be found here in CERN CDS. Nooon addresses a vital gap: persons with disabilities require search engines that surface structured, accessible, and representative information while ensuring privacy in both access and contribution. Today’s dominant search ecosystems not only overlook these requirements but also amplify exclusion by treating accessibility as an afterthought. When I pitched this idea during our WP4 and WP6 meetings, Andreas—my supervisor—introduced me to his earlier work on the BOINC-based LHC@Home project at CERN. That project used a distributed volunteer computing model where participants donated spare computing cycles to simulate particle collisions (CHEP04-488, CERN CDS). Although its scientific context was different, the idea resonated deeply: sustainable computation by design, achieved through public participation. This ethos now informs Nooon’s infrastructure. We are exploring the integration of lightweight, user-donated compute and annotation frameworks—where users may include persons with disabilities, caregivers, clinicians, and advocacy communities. These contributors shape and annotate the knowledge ecosystem without requiring high-performance GPUs or energy-intensive clusters. Nooon shows that inclusion need not come at the cost of sustainability. On the contrary, it sets a precedent for responsible, low-energy AI systems that empower rather than extract hence reducing impact on climate change. In the full paper currently in development, we are prototyping Nooon alongside OpenWebSearch’s dedicated “disability” index slices. Through this integration, Nooon emerges not only as a research artifact, but as a functioning prototype of ethically aligned search—a tool that reclaims the web as a shared, inclusive commons designed to serve all users, especially those historically left out of mainstream digital infrastructures.

Key Highlights of participatory and advocacy work on Disability by Noor

Hackathon Participation and Advocacy

My journey has been enriched by active involvement in various hackathons and collaborative projects in domain of disability and inclusion:

Speaking Engagement

Following my participation in the CERN Webfest Hackathon and HackaHealth Project Caroline, I was encouraged by Maria Dimou to share my experiences and insights in a talk titled "WIT Talk with Noor Afshan Fathima, CERN IT accessibility studies' ally". During this talk, I delved into the development of the project "Crowdsourced designs, 3D printed enhancements for disabled people", sharing the personal inspiration behind it. I highlighted the challenges faced in creating accessibility solutions and the transformative impact of open-source innovations in this field.

Product Testing and Early Adoption

As a passionate advocate for inclusive design, I have been involved with MACU4, a company specializing in modular orthoprosthetic solutions:

Ongoing Training and Personal Development

To further my commitment to well-being and accessibility, I am undergoing training under Dr. Britta Dezillie through Pikorua:

Photography Collaboration

I had the privilege of participating in a photography project in collaboration with Andreas Musso, the head of the CERN Photography Club, who also runs his personal photography side project Endryuks. The images, documenting a personal narrative of strength and self-expression, are showcased below, with more to come:

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Knitting as Personal Growth

Inspired by Duarte Galvão, I embraced knitting as a way to overcome mental barriers and nurture creativity. It has become a meditative practice that enhances focus and resilience.

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Disability Advocacy and Networks

I am proud to be part of the informal Disability at CERN network, a community committed to fostering inclusion and accessibility within one of the world’s leading scientific institutions. As part of this network I was also sponsored to attend the Disability at Work Summit organized by dILeaders, where global leaders share insights on advancing disability inclusion in the workplace.